Camp Sundown
She went to school inside a sleeping bag. Her mother drove. On arrival, and safely indoors, the sleeping bag came off and the school took over.
Wherever she moved inside the Taconic Hills building the windows along her route were shaded, fluorescent lighting changed to incandescent and even some vending machine lighting was blocked out.
All of these precautions were necessary because even a fleeting exposure to sunlight or even fluorescent lights would blister Katie Mahar’s skin causing third degree burns.
Katie suffers from Xeroderma Pigmentosum (XP), an extremely rare condition that causes life-threatening ultra-sensitivity to UV rays.
But skin sensitivity is not the only symptom of XP or even the worst. The UV rays attack on the cellular level, damaging organs and causing rare skin and eye cancers so people with XP rarely survive childhood. Katie, who is now deaf and nearly blind, is at age 29 the oldest XP sufferer in the world who has not yet been afflicted by related cancers.
Those with XP belong to a very exclusive club- there are only about one in a million of them scattered throughout the world. As you can imagine, they have few if any friends. When the neighborhood kids are playing in the summer sun, the XP child stays indoors. For a youngster, the isolation may be the worst part.
That’s why in 1995, Katie’s parents Caren and Dan Mahar created Camp Sundown in Craryville, NY. It is the only camp in the world that caters to children with XP and their families. Like other sleepover camps, there are campfires and marshmallow roasts and sing-alongs and kickball games, but here, all activities are enjoyed at night. It is the only time each year that these kids can run and play outdoors with others “just like them”.
And because of the financial strain that XP can put on families, the Mahars welcome everyone to Camp Sundown free of charge.
Sunday October 24th, there will be a very cool fundraiser at Copake Country Club to raise money for Camp Sundown- The 2021 Camp Sundown Golf Ball Drop. Here’s how it works- you buy a numbered golf ball for $25 either online or at the event. Then at 2:00 pm a helicopter will drop the balls onto a makeshift “green ” on the first fairway. The first balls to drop into the holes win valuable prizes. There will also be raffles to reward other number holders.
You needn’t be present, but wouldn’t you want to be? See you there!
For more information about Camp Sundown or the Golf Ball Drop call Caren@518-929-2174 or email at xps@xps.org.
To buy a ball online go to: https://www.xps.org/.
Kara Zinke
No one can know how many lives have been made better thanks to Kara Zinke. The 18 year old died of a cerebral hemorrhage in 1993. Back then, because Kara was an organ donor, four people’s lives were saved through the gifts of her heart, kidneys and liver.
These days Kara’s family organizes the Kara Zinke Emergency Fund Golf Tournament to help local families who, because of illness, accident or other tragedy, find themselves in emergency situations. The funds, often as much as $13,000 a year or more, are distributed through a partnership with the Canaan Northwest Lions Club.
20 foursomes teed up for Saturday’s 10th Annual Tournament at the Canaan Country Club where the mood was festive and the weather was New England autumn gorgeous, and four generations of Zinkes were on hand to oversee the event.
For the Zinke family the money raised from this tournament is their way to give back to a community that showed them so much kindness when they needed it most.
The Annual Kara Zinke Emergency Fund Golf Tournament is the organization’s major fundraiser for the year. To learn more about the fund or to make a donation visit thekarazinkeemergencyfund@yahoo.com.
Out of the Darkness
I can’t believe it’s been six years – it was September of 2015 when Joey Sherwood took his life, and an entire town wept.
Ever since, Joey’s widow Joy has been taking part in the Out of the Darkness Community Walk, an annual event sponsored by the American Foundation for Suicide Prevention (AFSP). The Walk allows Joy to honor her husband and connect with other survivors who share her particular brand of pain.
The Walk is also a fundraiser, and although it doesn’t take place until September 26th, participants like Joy have already been busy raising money to help AFSP continue their important work.
Like last year, Joy is the leading fundraiser for the Dutchess/Ulster Walk, but she needs your help to reach her goal. The AFSP has a goal too- to reduce suicides by 20% by 2025 (nearly 50,000 Americans die each year from suicide).
To help Joy and to honor Joey’s memory please consider a contribution by following this link: https://afsp.donordrive.com/participant/Joy-Sherwood-2021
The AFSP teaches grade schoolers about mental health, continues research into what causes people to attempt suicide, and educates the general population about what behaviors to look for and how to get help for someone who exhibits those warning signs.
To get more information about the Dutchess/Ulster Out of the Darkness Walk visit: https://sportingacause.com/event/dutchess-and-uls…-against-suicide/
For the Berkshire County Out of the Darkness Walk go to : https://sportingacause.com/event/berkshire-county…-prevent-suicide/
For the Columbia-Greene Out of the Darkness Walk go to: https://sportingacause.com/event/columbia-greene-…-against-suicide/
Suicide is the 10th leading cause of death in the US.
To learn more about AFSP’s good work visit https://afsp.org/
Tired of Virtual Events? Me too!
Virtual events were the salvation of sports-related fundraisers, especially running/walking affairs during the pandemic. When you couldn’t gather to run a race for your favorite cause, you could still run an isolated distance and support your charity.
Well, in-person races are back now, but as you can see on Facebook, the virtual versions persist, and you may want to look closely at the causes they “support” before you buy in.
See names like “5X5K For Good”, “India Breathe Strong”, “Miles For Mutts”, “Let Freedom Ring 5K”, “Hold the Door for Others 5k” and on and on…
All have a virtual element, but their locations, causes and financial involvement are often obscure. One race supports an animal shelter, a noble cause, but it’s located in Dallas. Other virtual races boast of supporting legitimate causes, but after you register and pay your fee, you (not the organizer) are asked to make a donation to the charity.
Truth is, many virtual 5K’s, 10K’s and marathons are just for-profit ventures without a hint of philanthropy involved.
If you are a runner or walker and want to participate in races that truly support worthy local causes, here are some upcoming suggestions from sportingAcause.com:
Run With The Animals 5K, June 27th in Goshen, CT, supports the NW CT YMCA
Andrea Marcoe Racing to Save lives 5K, Union Vale, NY, supports Nat’l Brain Tumor Society and Dana Farber.
Pawling Triathlon, Pawling, NY, supports Pawling Recreation.
Litchfield Hills triathlon, New Hartford, CT, supports Brodie Park.
Canaan Railroad Days Run, July Canaan, Ct also supports the NW CT YMCA
You can find hundreds more events of all kinds throughout the year at sportingAcause.com, and they support causes you care about!
Seth Gardner
It has been an era of firsts for Salisbury Winter Sports Association’s own Seth Gardner, fresh from his return from Steamboat Springs, Colorado where he competed in this year’s Junior Nationals.
Seth is the first member of Team SWSA to jump off our 70 meter hill in many years. He also made the Junior National team four consecutive years and competed in the annual Junior National competition three times ( the fourth was COVID canceled).
At Steamboat, Seth came in 7th in the team category and jumped a personal best 58.5 meters in a field that included some of the best junior jumpers in the country.
Earlier this winter Seth ( far left in the picture) helped out with coaching duties for the junior jumping program, continuing a teaching tradition that dates back to the beginning of ski jumping in Salisbury.
We at SWSA are very proud of Seth’s accomplishments, and he certainly serves as a role model for our other junior jumpers who are coming along.
Birdies for Charity
The Travelers and Travelers Championship announced a couple weeks ago that they would jointly match all donations, up to $1 million, made to the Hole in the Wall Gang Camp after a devastating fire caused severe damage to their facilities.
This was welcome but not unexpected news. The Travelers Championship has been a long-time supporter of the Camp which provides camping experiences for 20,000 children with serious health issues every year. The Camp was founded by the late actor/philanthropist Paul Newman.
What many may not know however is that the Travelers Championships supports more than just-high profile charities. Much of the $1.6 million raised at last year’s Tournament came from the Birdies for Charity program which benefited well over a hundred area charities, both large and small. In our neck of the woods the Northwest CT Habitat for Humanity and the HVRHS Golf Team have both received support in recent years.
So here is what you can do for your favorite charity. Encourage them to sign up for Birdies for Charity (any charity in Connecticut or the Northeast is eligible ) and take advantage of the Travelers program as long as it is a 501c3 registered non-profit.
Once enrolled, your charity can gains access to the Travelers’ national fundraising platform to tell their story and use the program’s turnkey administration. Then Travelers will donate an extra 15% of whatever money your cause raises!
Although the Travelers Championship won’t be until June 21 – 27 this year now would be a good time to get involved. You can access the information here: https://travelerschampionship.com/birdies-for-charity/.
Good luck!
What Will Be Our Take-Away?
The following letter appeared in the Jumpfest 2021 program that appeared as an insert in the February 3rd issue of the Lakeville Journal
What will be our take-away from the year just past?
We have seen it all, haven’t we?
Most of us have lost something – our freedom to move about as we’d like, our peace of mind, our dignity, our livelihoods, or for some, even our lives.
Schools and businesses have been shuttered , and we have been denied the company of our families and our friends. Fundraising events for our beloved charities were canceled. Some of us have had to swallow our pride and ask for food. Fear and distrust hang in the air like the virus itself.
But we humans are a good and resourceful lot, rising to our many challenges. At the pandemic’s beginning, when masks were in short supply, folks started sewing them and giving them away. As the demands on food banks increased, so too did food drives. Even restaurants with plenty of problems of their own, have gone above and beyond to provide dinners for those who need them.
And this Christmas time when Santa could not host young visitors, he hopped on a fire truck and visited their homes.
As charities could not hold gatherings for their fundraisers they have relied more heavily than ever on their annual appeals, and donors have responded.
So it has been with SWSA this year. We lost the Brew Ski Fest, a major fundraiser, but our Golf Tournament was successful and we shared our good fortune with the Jane Lloyd Fund. Our annual Ski Swap was a great success as eager shoppers stood for hours in the drizzle, and our very loyal and generous supporters have responded to our annual appeal.
Yes we have seen it all.
So what will be our take-away from the year just past?
Will there be continued fear and loathing from this too-long crisis, or will we recognize a light at the tunnel’s end along with its accompanying hope?
Here at SWSA, as we jump into 2021, we’re going with hope.
Goodbye 2020
It’s been one heck of a year, has it not? Everyone has been hurt, one way or another, by the forces of the pandemic, including our cherished non-profits. Here at sportingAcause we have seen many sports-related fundraisers either canceled or altered since March.
Below is a list of 130 fundraisers along with the benefiting charities that lost their events this past year. When you scroll down to the last event imagine another list of 150 more events that had to turn “virtual” or otherwise alter their programs. With few exceptions, these events fell far short of financial expectations.
Hopefully 2021 will allow us to resume our fundraising events, but, in the meantime, let us remember our favorite causes with our hearts and our checkbooks.
Bring on the Heat 4th Annual 5K – Bethlehem Fuel Bank
Arlington Education Foundation 5K Run/walk – Science scholarships
Shane Kinsella Memorial 5 Mile/2 Mile – local children’s charities
Upton Lake Christian School 4th Annual Eagle Run – Hudson Valley Animal Rescue and Sanctuary
Wellness 5K – Volunteers in Medicine, Berkshires
Kiwanis Kingston Classic – area children’s charities
Berry Pond Hill Climb – scholarships
Sean’s Ride – Scholarships and anti alcohol and drug programs
Sean’s Run – scholarships and anti alcohol and drug programs
Girls Just Wanna Run – scholarships, local and national charities
Rhinebeck Hudson Valley Full and Half Marathons – local charities
Retro 5K Run – Morris Recreation Dept.
Thrill in the Hills Duathlon – Litchfield Community Center
Norfolk Volunteer Fire Dept. 5 Mile Road Race – Norfolk Volunteer Fire Co. programs
Relay For Life Berkshire County – American Cancer Society
BMC Independence Day 5K – Berkshire Medical Center
Litchfield Hills Triathlon Brodie Park
Hopkins Vineyard Triathlon – Washington Volunteer Ambulance
Sandy Beach Triathlon – Sandy Beach Restoration Fund
Jane Lloyd Fund Bike Ride – Pays living expenses for area cancer sufferers
Canaan Rail Road Days 5 Mile – NW CT YMCA
Harlem Valley Rail Ride – several local charities
Junk Yard Dogs Half – Lustgarten Foundation (for pancreatic cancer research)
Tour of the Litchfield Hills – Cancer Care Fund of the Litchfield Hills
Beach to Beach 5K – Bantam Lake Protective Association
Torrington Donors Week Road Race – Torrington Trails Network
Overdose Awareness Walk – help for individuals struggling with addiction
High watch 3rd Annual Sprint for Sobriety 5K – financial aid for addiction recovery
Lee Founders Day 5K – Lee High School cross country team
Relay For Life Litchfield High School – American Cancer Society
Cerebral Palsy Walk – Cerebral Palsy of Ulster County
Free to Run Trail Races – support women and girls living in areas of conflict
Miles 4 Moe 5K – Camp Moe
Roe Jan Ramble – Housatonic Valley Rail Trail
Hogsback Half Marathon – Running For Rescues (animal welfare)
Run for Your Knives – scholarships
Apple Squeeze 5 Mile – Morris Elementary PTO
Gould Farm Running for Recovery – support programs for addiction recovery
Walk the Walk for Recovery – Villa Veritas Foundation (addiction recovery)
Steep Rock 10K – Washington, CT charities
Relay For Life Berkshires – American Cancer Society
Fall Fest 5K Run/Walk – Housatonic Youth Service Bureau
Fall Foliage 1/2 Marathon & 5K – Michael J. Fox Foundation
Norfolk Tour de Forest – Norfolk Rails to Trails
Steel Rail Half Marathon/ 8K – Ashuwillticook Rail Trail
Ryan’s Run – Ryan McElroy Children Cancer Foundation,
Making Strides Against Breast Cancer of Litchfield Cty – American Cancer Society
Berkshire healthcare Harvest Run – Berkshire Healthcare
12th Annual Cider Run – Wamogo scholarship Fund
Burlington 5K – Burlington Community Fund
Hidden Valley Half Marathon – Washington emergency services
Ed McGuire 20th Annual Cannonball Run – Falls Village Volunteer Fire Co
Valatie Veterans 5K Run – Valatie Boy Scout Troop 2114
Steep Rock Half Marathon – local Washington charities
DWTA Turkey Raffle Run – Center for Compassion
Great Barrington Turkey Trot, 44th Annual – local charities
Jingle Bell 38th Annual 5K Run – Litchfield Parks and Recreation
Jingle Bell Fun Run – Eagle Toy Fund
Litchfield/Morris Rotary & Litchfield Lions 19th Annual Golf Tournament – Litchfield and Wamogo High school scholarships
Murphy Open – Jane Lloyd Fund
4th Annual Isaiah Lamb Golf Classic – Financial assistance to students with disabilities
Couch-Pipa Annual Golf Tournament – Scholarships for Canaan and Falls Village students
Friends of Moe Golf Tournament – Support for local families in need
Knights of Columbus Adam J. Mahalak Memorial Golf Tournament – Local scholarships
Tournament for the Orphans – support for orphanages in Ghana
James Ducillo Exchange Golf Tournament – Canaan and Falls Village student scholarships
4th Annual Retro Dodge Ball Tournament – Litchfield Education Fund
VFW Auxiliary Bunco Tournament – VFW projects
Recreation Scholarship Benefit 3rd Annual Basketball Game – Scholarships
Pittsfield Super Polar Plunge – Special Olympics, MA
9th Annual Monopoly Tournament – Berkshire County Kids Place
Ride 1 Rally – Alzheimer’s Association
Spring Splash – Jane Lloyd Fund and John Rice Scholarship Fund
Special Olympics NY Summer Games – Special Olympics, NY
Goshen Stampede – Goshen Agricultural Society
Salisbury Cricket Match – Jane Lloyd Fund and Salisbury Ambulance
Round Hill 96th Annual Highland Games – Alzheimer’s Association
Dutchess Dragon Boat Race – Habitat for Humanity, Dutchess County
Jane Lloyd Fund Clambake – Jane Lloyd Fund
Kentucky Derby Social – Salisbury Rotary for local high school scholarships
Goshen Fair – Scholarships
Bethlehem Fair – Scholarships
Brew Ski Fest – Salisbury Winter Sports Association
Trans Am Fall Classic – Alzheimer’s Association
IMSA Northeast Grand Prix – Alzheimer’s Association
Norfolk Curling Club Bonspiels – Norfolk Curling Club programs
United Way and Charlie Ormsby Golf Tournament – United Way and golf scholarships for children
United Way Glo-Ball Tournament – United Way of NW CT
Berkshire County ARC Golf Tournament – Berkshire County ARC programs
Maplebrook School Golf Tournament – scholarships
Litchfield Open – Litchfield Sports Booster Club
Torrington Child Care Center Golf Tournament – funds Care Center activities
John V. Ventetti K of C Golf Tournament – scholarships
Immaculate Conception Church Golf Outing – fund ongoing church maintenance
Oliver Wolcott Golf Scramble – scholarships
Torrington/Winsted Rotary Golf Tournament – funds a variety of local charities
Drive For a Cure – supports a local family with health challenges
Great Barrington Rotary Club Golf Tournament – scholarships
Salisbury Youth Hockey Golf Tournament – supports the Salisbury Youth Hockey program
Tee Up 4 Autism – supports Torrington Area Families for Autism
Earth Angels Fight Against Cancer Golf Tournament – supports Moments House
Ice Bucket Open – ALS Association , Connecticut Chapter
Sheffield Fire Co. Golf Tournament – supports Fire Co. programs
Torrington Lion’s Club – scholarships and eye research
HYSB Annual Golf Tournament – supports programs of Housatonic Youth service Bureau
John Foley Lone Oak Challenge Golf Tournament – Canaan Fire Co.
Salisbury Central School Golf Tournament – supports eighth grade class trip
Hearts of the Father Golf Tournament – supports educational programs in Africa
UNICO Golf Tournament – supports Torrington area charities
Gerald Miller Boys and Girls Club of the Berkshires Golf Tournament – supports Boys and Girls Club
Fairview Golf Classic – funds new hospital equipment
Kara Zinke Golf Tournament – supports local families in need
Gilbert School Blue & Gold 5K – supports school athletic programs
Gilbert School Blue & Gold Golf Tournament – supports Gilbert School athletic programs
A Thanksgiving Story
Patrick Quinn died Sunday at age 37 after a seven-year battle with ALS. He was a brave man- you have to be brave when you have ALS (amyotrophic lateral sclerosis or Lou Gehrig’s disease).
The degenerative neuromuscular disease eventually robs its host of nearly every bodily ability, even swallowing. But the disease leaves the mind intact.
And Patrick used his mind to the utmost. He is credited with co-creating along with two other ALS sufferers, the hugely popular Ice Bucket Challenge which in 2014 raised $220 million for the ALS Association. If you’ll remember, people, including many celebrities, took selfies being doused with buckets of ice water and challenged their friends to do the same.
That funding allowed the Association to make important advances for treatments for ALS, in eye movement communication technology and helping patients and their families cope with the disease. Many lives have been made better because of the efforts of Patrick and his friends.
These advances have allowed what Patrick called “a new sense of hope”.
So, what does this story have to do with Thanksgiving?
Well isn’t hope really the unheralded twin of gratitude?
When we give thanks for what we have today, is there not an implied hope for tomorrow?
However you choose to celebrate, we at sportingAcause wish you a safe and thankful day.
Transparency
Entry Fee: $40.
What you get: running jacket, winter hat, participation medallion.
Portion of entry fee to charity: $ 0.
You may have noticed the explosion of Virtual Runs on Facebook lately, but not all of them are what they seem. Some of them are local races supporting local causes that have turned virtual because of the pandemic. I have many of them here on sportingAcause.com.
But a huge wave of what I call manufactured events have washed ashore with names like Smashed Santa Races, Wine Run Turkey Trot, Run for the Dogs, Face Mask Run and the one described above- America’s Turkey Trot.
These “fundraiser” virtual races provide a lesson in Buyer Beware.
America’s Turkey Trot, for example, has partnered with Feeding America, a nation-wide hunger charity, but the word “partner” is open to interpretation.
Although America’s Turkey Trot boasts Feeding America as a partner, no money from your entry fee will go to the charity. Instead, when you register (and pay), you will be encouraged to write your own check to support the work of Feeding America. Not quite what you thought, right?
Is this illegal? – no.
Is it unethical? – um…
Is it transparent? Absolutely not!
To be fair, probably some will write an additional check to Feeding America, and that’s a good thing.
But the takeaway here is that if a virtual “fundraiser” event does not tell you exactly how much of your money is benefiting whom, then sign up for a local event instead, one that maybe supports a food bank in your town, one that tells you how much of your entry fee goes to help your neighbors.
Now that’s transparency!