Camp Sundown 2021 Golf Ball Drop
The Camp Sundown 2021 Golf Ball Drop will take place Sunday, October 24, 2021 at the Copake Country Club, 44 Golf Course Road, Craryville, NY, 12521.
The event runs 11:00 am to 2:00 pm.
Here’s how this very cool event works.
You buy a numbered golf ball for $25. At 2:00 pm your ball, along with hundreds of others will drop from a helicopter onto a makeshift “green” on Copake Country Club’s first fairway. Balls that find their way into one of several holes will win prizes.
Thousands of dollars worth of prizes along with a top cash prize of $1000 will literally drop out of the sky.
You need not be present to win.
Winning numbers will be posted at www.xps.org and winners not present contacted the evening of the event.
A raffle of all patron tickets will also be held after the drop for local items, as well as a regular raffle and 50/50 drawing on site that day. The Greens Restaurant will be open for purchase of refreshments and fine foods.
To buy your golf balls go here: https://www.xps.org/
You can also buy your balls on the day of the event.
If you are a golfer, this may be the most expensive ball you have ever purchased, but it will be the most meaningful, because the proceeds from this event will help sustain Camp Sundown, a sanctuary for very special children.
When Dan and Caren Mahar’s youngest daughter Katie was diagnosed with Xeroderma Pigmentosum (XP) they wanted her to have a “normal childhood” and to be able to go to camp. For children, like Katie, a day camp would be painful, and potentially life threatening. Children with XP can not stand even limited exposure to the sun or other types of ultraviolet light. The Mahars’ dream of creating a “night camp” began in 1996 as an XP family retreat in Poughkeepsie, NY. Thanks to many generous donors, in 2003, Camp Sundown Retreat House was opened in Craryville, NY.
The single most important project of the XP Society, Camp Sundown is an annual gathering of XP families and leading researchers for a family retreat and medical conference. Camp Sundown brings together children and their families to share experiences, information and laughter under the safety of the stars. This day camp experience runs on a different time clock. Turning night into day, Camp Sundown provides a week of fun, friendship and activities. For families and children dealing with XP on a daily basis, this is a dream come true.
The camp experience is free to all children.
For questions or more information about the event or Camp Sundown, please contact Caren@518-929-2174 or at email@example.com
She went to school inside a sleeping bag. Her mother drove. On arrival, and safely indoors, the sleeping bag came off and the school took over.
Wherever she moved inside the Taconic Hills building the windows along her route were shaded, fluorescent lighting changed to incandescent and even some vending machine lighting was blocked out.
All of these precautions were necessary because even a fleeting exposure to sunlight or even fluorescent lights would blister Katie Mahar’s skin causing third degree burns.
Katie suffers from Xeroderma Pigmentosum (XP), an extremely rare condition that causes life-threatening ultra-sensitivity to UV rays.
But skin sensitivity is not the only symptom of XP or even the worst. The UV rays attack on the cellular level, damaging organs and causing rare skin and eye cancers so people with XP rarely survive childhood. Katie, who is now deaf and nearly blind, is at age 29 the oldest XP sufferer in the world who has not yet been afflicted by related cancers.
Those with XP belong to a very exclusive club- there are only about one in a million of them scattered throughout the world. As you can imagine, they have few if any friends. When the neighborhood kids are playing in the summer sun, the XP child stays indoors. For a youngster, the isolation may be the worst part.
That’s why in 1995, Katie’s parents Caren and Dan Mahar created Camp Sundown in Craryville, NY. It is the only camp in the world that caters to children with XP and their families. Like other sleepover camps, there are campfires and marshmallow roasts and sing-alongs and kickball games, but here, all activities are enjoyed at night. It is the only time each year that these kids can run and play outdoors with others “just like them”.
And because of the financial strain that XP can put on families, the Mahars welcome everyone to Camp Sundown free of charge.
Sunday October 24th, there will be a very cool fundraiser at Copake Country Club to raise money for Camp Sundown- The 2021 Camp Sundown Golf Ball Drop. Here’s how it works- you buy a numbered golf ball for $25 either online or at the event. Then at 2:00 pm a helicopter will drop the balls onto a makeshift “green ” on the first fairway. The first balls to drop into the holes win valuable prizes. There will also be raffles to reward other number holders.
You needn’t be present, but wouldn’t you want to be? See you there!
For more information about Camp Sundown or the Golf Ball Drop call Caren@518-929-2174 or email at firstname.lastname@example.org.
To buy a ball online go to: https://www.xps.org/.
Camp Sundown 14th Annual Golf Classic
The Camp Sundown 14th Annual Golf Classic will be held Friday, August 6, 2021 at Copake Country Club, 44 Golf Course Road, Craryville, NY 12521.
The entry fee for the four-person scramble format tournament is $100 per person which includes green fees, cart, lunch, cocktail hour, dinner, music and prizes.
There is a dinner-only option for $35.
On-course contests include longest drive and closest to the pin on all par three holes.
Send checks to : Robert Preusser, 790 Rt 23, Craryville, NY 12521.
9:30 am Sign in, continental breakfast
10:30 am Shot gun start
Lunch, snacks and beverages at the turn
4:30 pm Cocktail hour
Dinner, awards and music at Churchtown Fire House
For more information call:
Frank Z. at (518) 755-2626
Caren M. at (518) 929-2174
There are still sponsorship opportunities for $50, $75 and $100
JJRT Pools and Spas
Churchtown Fire Co.
Proceeds from the tournament will help fund Camp Sundown programs.
Camp Sundown is the only camp in the United States dedicated to children with Xeroderma Pigmentosum (XP), a condition that prohibits sufferers from exposure to sunlight and other UV rays.
To learn more about Camp Sundown visit https://www.xps.org/camp-sundown